Consider Testing for Celiac Disease RSS Follow me on: If you’ve been diagnosed with both irritable bowel syndrome (IBS) and fibromyalgia, you have much higher chances than normal of having celiac disease … and the gluten-free diet may help alleviate all your symptoms, not just your digestive ones. That’s the word from a new study published in the medical journal Arthritis Research and Therapy. Researchers looked at 104 people, mostly women, who fulfilled the medical criteria for both fibromyalgia and IBS, and matched them with 125 people who had been diagnosed with IBS but not fibromyalgia. Researchers screened everyone using celiac blood tests , and asked them to complete a variety of questionnaires and surveys about their symptoms. The study found that people with both IBS and fibromyalgia scored much worse in tests measuring quality of life, tiredness and gastrointestinal complaints than those with just IBS. Meanwhile, seven people from the IBS/fibromyalgia group tested positive for celiac disease. Once they started eating gluten-free, they showed “remarkable improvement in their digestive and systemic symptoms on follow-up,” the researchers wrote. Anecdotally, some people who have fibromyalgia report that they feel better gluten-free even if they don’t have celiac disease. My colleague Adrienne Dellwo,’s Expert on Fibromyalgia & Chronic Fatigue, writes about the study and the possible connection between the conditions here: High Rates of Celiac Disease in Fibromyalgia with IBS The bottom line: If you have fibromyalgia and IBS, you might want to consider getting tested for celiac disease (you need to be tested before you go gluten-free for the tests to be accurate). If you do have celiac, you may see welcome relief from symptoms once you’ve started the diet. But even if you don’t have celiac, you may want to consider — in consultation with your physician — a gluten-free diet trial to see if the diet helps you manage your symptoms.

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This was just my experience, okay?. I take no medications for any of the many things doctors said I had. At one time, I had maybe 13 or so in my medicine cabinet that I tried with no success. If the memory loss, ataxia, etc. is not a progressive dementia, and you do not have lesions on the brain, etc. I am not sure what taking this drug will do for you, sincethe underlying cause is likely from malabsorption from the celiac. Not only that, but with stage 3 Marsh , I am not sure how the doc thinks this medicine will even get absorbed right now. It’s your call, of course. If you think it would help, that’s for you and your doctor to determine what to do. Welcome to the forum. Hang in there! Thank you for your detailed response. I’m sorry that you went through that, but hearing your experience gives me hope. I’m scheduled to get a brain MRI shorlty to look for lesions, tumors, etc., so I’m praying that will come back clean and I can focus exclusively on celiac. One follow-up question: I don’t undetrsand the significance of the “Marsh: 3C” classification, but it sounds like you do. Any way you can explain? Thanks 0 the “old scale” was Stage 0 The mucosa (intestinal lining) is normal, so celiac disease is unlikely. Stage 0 is known as the “pre-infiltrative stage.” Stage 1: The cells on the surface of the intestinal lining (the epithelial cells) are being infiltrated bylymphocytes, the small white blood cells involved in the bodys immune response to disease. Stage 2: The changes of Stage 1 are present (increased lymphocytes), and the crypts (tube-like depressions in the intestinal lining around the villeare “hyperplastic” (larger than normal). Stage 3: The changes of Stage 2 are present (increased lymphocytes and hyperplastic crypts), and the villi are shrinking and flattening (atrophy). There are three subsets of Stage 3: –Partial villous atrophy (Stage 3a) –Subtotal villous atrophy (Stage 3b) –Total villous atrophy (Stage 3c).

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